Autism Awareness Month

PackersGirl

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It’s Autism Awareness Month! I love this month because it’s an opportunity to talk about kids and adults who may not look “different” but are in a very special and unique way. A time when we can all come together and ask questions, educate and be there for each other as parents, siblings, spouses, family and friends.

Our story isn’t unique. In fact, it’s pretty common and full of meltdowns, trying times, small wins and big wins! @Hibs and I have five kids, our oldest son who is now 23 was diagnosed when he was about 6 years old. It took about half a year to test him for Autism. He was originally diagnosed with PDD-NOS then later on with Asperger’s. I’m not going to lie and say it was easy, or that I knew it all or that I even knew a quarter of what I needed to. But, we fought hard for our son to have a normal life in school, with friends and family. We were on a first name basis with teachers, counselors and principals. The school let us down more times than I can count unfortunately. I let my son down more times than I can count. I would react the wrong way, get upset when I shouldn’t have, ground him when it wasn’t his fault, the list goes on. We took him to the best Autism Spectrum Pediatrician we could find, been to countless therapy sessions, tried every drug combo out there, in-patient therapy, out-patient therapy and even residential treatment. Being a parent is sometimes difficult, being a parent to a special needs child is even more so at times. He taught me so much and continues to make me proud of how far he’s come. He is persistent, smart, kind, loving and works hard for his family. I love my son. Let’s bring awareness. Let’s talk about it. It’s time to be open about how people may look “normal” but also have a few unique quirks. Educate yourself and your children. Befriend the children and adults who may seem a little unique. because really, aren’t we all? Raise awareness!
 
Our older son, turning 15 next month is diagnosed on the Autism Spectrum in addition to ADHD, and in recent years depression and anxiety. We’ve had some tough days with him, particularly recently, but I wouldn’t trade his heart for the world. Although he has gotten better, he doesn’t relate to people the best, having hard times understanding social clues, but is doing better there and has kind of changed his friend group to people who accept him for who he is.

As much as people-ing can be a problem through, his kid loves animals - all animals - unconditionally…and plans to make that his career if he can. He is a smart kid and makes good grades, but certainly has to put more work into overcoming some of his obstacles.
 
My oldest is a mentor in a school program called Best Buddies. His Buddy is awesome and they have such a great family. They come to all of his sporting events and just brought him over a birthday present and they hung out together for a bit playing video games and making funny TikTok’s together. It’s great to see and these awesome kids need recognized and appreciated more because they’re brilliant
 
As I've mentioned before, my wife and I both worked in mental health for many years, and one of the things I'm most grateful for is the 100s of kids with autism I worked with. Not only was it a great experience because those kids, though challenging in many ways, are also so amazing, and have such a funny way of explaining things and putting them in perspective, but also because we are also now parents of a child on the spectrum and thankfully have a ton of experience working with kids with similar struggles. While that's great, it changes everything when it's your own kid, and we still screw up all the time, so I hope you don't beat yourself up too much!

Our path has been similar in some ways. One is the challenging things is that the spectrum of autism is so wide, it's often hard to get an accurate diagnoses in order to get the services they need. For my wife and I, and many of our friends that are also in the mental health field, it was very clear what was going on for her from a very young age. We hoped with the changes in the DSM getting rid of PDD and Aspergers, and going to just ASD, that this might change. She is incredible intelligent (130+ full scale IQ) but doesn't understand social cues at all (73 non-verbal processing). She was evaluated two separate times, by terrible psychologists that said basically she doesn't qualify because she doesn't flap. 🤯 My wife is a psychiatrist, so you can imagine how that went. There's also no medication that gives you social awareness. 🤣

Fortunately, her needs aren't as extreme as a lot of kids on the spectrum, and the school put her on a 504 without a diagnosis. I was terrified what middle school would look like fur her, but she's doing amazingly!

Thanks for opening up and sharing @PackersGirl, a lot of people end up feeling very isolated and alone parenting kids with autism, so please know I'm here any time if you want to chat.
 
Our older son, turning 15 next month is diagnosed on the Autism Spectrum in addition to ADHD, and in recent years depression and anxiety. We’ve had some tough days with him, particularly recently, but I wouldn’t trade his heart for the world. Although he has gotten better, he doesn’t relate to people the best, having hard times understanding social clues, but is doing better there and has kind of changed his friend group to people who accept him for who he is.

As much as people-ing can be a problem through, his kid loves animals - all animals - unconditionally…and plans to make that his career if he can. He is a smart kid and makes good grades, but certainly has to put more work into overcoming some of his obstacles.


Love your sons heart and passion for animals! How amazing that he changed his friend group, that is such a huge hurdle but yet definitely needed! Thanks for sharing your story! For so long we felt alone in what we went through because not many could relate. If you ever need an ear, we’re here. It’s challenging to navigate through at times. We may not have all the answers but we can relate and understand.
 
My oldest is a mentor in a school program called Best Buddies. His Buddy is awesome and they have such a great family. They come to all of his sporting events and just brought him over a birthday present and they hung out together for a bit playing video games and making funny TikTok’s together. It’s great to see and these awesome kids need recognized and appreciated more because they’re brilliant
Love this!!! Our youngest son just met a kid in school on the spectrum and they are becoming good friends. It’s beautiful to watch as our youngest sees a different perspective as a friend and not as a sibling.
 
As I've mentioned before, my wife and I both worked in mental health for many years, and one of the things I'm most grateful for is the 100s of kids with autism I worked with. Not only was it a great experience because those kids, though challenging in many ways, are also so amazing, and have such a funny way of explaining things and putting them in perspective, but also because we are also now parents of a child on the spectrum and thankfully have a ton of experience working with kids with similar struggles. While that's great, it changes everything when it's your own kid, and we still screw up all the time, so I hope you don't beat yourself up too much!

Our path has been similar in some ways. One is the challenging things is that the spectrum of autism is so wide, it's often hard to get an accurate diagnoses in order to get the services they need. For my wife and I, and many of our friends that are also in the mental health field, it was very clear what was going on for her from a very young age. We hoped with the changes in the DSM getting rid of PDD and Aspergers, and going to just ASD, that this might change. She is incredible intelligent (130+ full scale IQ) but doesn't understand social cues at all (73 non-verbal processing). She was evaluated two separate times, by terrible psychologists that said basically she doesn't qualify because she doesn't flap. 🤯 My wife is a psychiatrist, so you can imagine how that went. There's also no medication that gives you social awareness. 🤣

Fortunately, her needs aren't as extreme as a lot of kids on the spectrum, and the school put her on a 504 without a diagnosis. I was terrified what middle school would look like fur her, but she's doing amazingly!

Thanks for opening up and sharing @PackersGirl, a lot of people end up feeling very isolated and alone parenting kids with autism, so please know I'm here any time if you want to chat.
I am so thankful that so much has changed since our son was in school and since he was initially diagnosed. Medication, diagnosis, treatment, they were all rough drafts i guess you could say 🤣 people that care and understand are necessary in the mental health field. Thank you being one of the genuinely good ones.
Funny how it all works out and how your time in that field helped you and your wife with your own child. I’m so happy to hear she’s doing so wonderful!! I love stories like that! If you guys ever need an ear, we are here too. It’s very different when it’s your own child. ❤️
 
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Thank you for sharing, my brother is on this spectrum and it has absolutely changed the way that I interact with people.
They teach us so much, we just need to listen.
 
This is something near and dear to my heart.
Growing up my mother was a specialist in a special needs school dealing with both functioning and non-functioning children.
 
This is something near and dear to my heart.
Growing up my mother was a specialist in a special needs school dealing with both functioning and non-functioning children.
It takes a special and kind person to work with special needs. I bet she was a blessing to so many kids and parents.
we put our son in play therapy for a while and his therapist was absolutely amazing! To this day I remember Mr. McCall and how much he helped Tyler.
 
My daughter has decided that her bird's food has to say "Gourmet" on the container. Brand and anything else doesn't matter, just Gourmet. Thought thiz was as good of a place as any to post this! 🤣
 
My daughter has decided that her bird's food has to say "Gourmet" on the container. Brand and anything else doesn't matter, just Gourmet. Thought thiz was as good of a place as any to post this! 🤣
Haha I love this
 
That's a good point. I'll report back with her rebuttal.
I laugh because I know there will be one and it’ll be great. Can’t wait to hear it.
 
I have some friends / who are parents of children who are within the definition.

The admiration l have and respect for them I can’t use words … they are awesome .

One of the children l
Was lucky enough to coach , in football ( our code - Australian rules -The teams we both support in our game , his team and mine have a healthy rivalry. All year l would give it to him , about his team , very late in the year … he came up to me and had a joke to share “ l laughed . My wife at the time heard it - she was in school system with children with what was termed challenging behaviours “ she commented it was rare - unusual for someone who has that ..my comment - “ why would l treat him any different … “ he’s just having fun and playing in his team ))))

And as a aside , he and his brother , were both choir members at a fairly high level , such were their voices 😃
 
Wife has since moved on from working with both low and high functioning children. Respect to the parents and compassion towards individuals facing everyday challenges.

#autismspeaks
 
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